The Rachel Esther Myasthenia Gravis Foundation was established as a tribute to my daughter and her boundless energy to combat this wearisome disease. Rachel was 14 years old when she was diagnoses with MG. It was a life changing moment for her and our family.
Whether you are personally affected by Myasthenia Gravis or have a family member, friend, or an acquaintance who confronts this disease, we all have a reason to hope for a world without this debilitating neuromuscular disease.
During this holiday season I trust you will take a minute to make a difference in the lives of teenagers with Myasthenia Gravis. This is the perfect time to give hope to these teenagers.
I’d like to share some of our goals for the upcoming year.
- Educate teens with Myasthenia Gravis as well as their families
- Provide an online teenage support group with a trained healthcare professional
- Establish a transportation stipend program to help patients get back and forth to necessary treatment facilities
- A $10,000 Grant for a Myasthenia Gravis Teenage Needs Assessment Study
I know you care about creating a world with less infirmity; with your help imagine what we will be able to accomplish together in the upcoming year.